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Hi, I'm "Casper"
I have Fredriech's Ataxia; one of the forty neuromuscular diseases which make up the Muscular Dystrophy family. For fifteen years, I have been working with the Jerry Lewis MDA Labor Day Telethon and many other MDA events.
I was diagnosed with MD at age 11; now I am 26, and have developed many other medical problems from MD: cardiomyopothy, neuropathy, hypotention, and restrictive lung disease.